Monthly Archives: May 2009

A Story in Photos.

As many of you know, my husband has taken a second job to temporarily assuage our money hump shortage that resulted from his job weirdness last year. Thus, it was not unusual that I arrived home from work one day last week to a house empty and silent from his extroverted noise-making pastimes.

I set my purse and mail down on the table, and proceeded to empty out my lunch bag. Coffee mug and milk jar in the sink, leftover soybeans that I hadn’t eaten into the fridge. I walked over to my desk to turn my computer on, the thing is now over seven years old and a little slower than it used to be. So it takes a little longer to warm up these days.

I rolled up my desk and was startled to see a box. Like “what the heck is this thing shoved in my desk” kind of startled.

Then I realized, it wasn’t just any box… oh no, this was a box from Hawaii with a Hawaiian newspaper. I’ve mentioned before, but I love opening packages where it’s packed with newspaper from another place. I just think that’s so cool to read about what’s going in another part of the world via their newspaper.

I lifted the newspaper packing material and there were three bags of Hawaiian Coconut coffee. He remembered how sad I had been that the Hilo Hattie’s near us had closed, which is where I used buy that coffee. So he ordered it from the Hilo Hattie’s where we had shopped when we were in Hawaii last August for our anniversary. And he had to actually call them because orders can’t be placed online due to their bankruptcy.

This dear man that I’m married to, who is working so hard at two jobs, went to all that trouble because he wanted to thank me for covering some of his chores here at home.

Sometimes I wish there were a way I could tell this man how much it means to me that he never takes me for granted. That he’s always doing little things to let me know how important I am to him. That he is constantly “plugged in” to our relationship.

Sometimes words just aren’t enough, so I just have to hope that he knows already.

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Filed under Best Husband

End to Endo.

Late Thursday night a couple weeks ago, as is my norm, I was reading blogs. Most people sleep late at night, I read blogs. During that particular reading session, I came across a link to a bioscience company who is conducting a study on women who have been surgically diagnosed with the disease of endometriosis.

One of the single things in my life that has impacted me the most, has been that disease. There has been nothing, absolutely nothing, that has left me feeling more helpless and more like a freak show, than endometriosis. It won’t kill me, but the unpredictable pain, hormonal swings and resulting depression, oftentimes made me wish I were dead.

I don’t say that lightly.

It is one of the few causes I support financially every year. I suppose like anyone who suffers from something for which there is no cure, it has become my passion to support companies who research possible cures. For that reason, I registered around midnight that night with that company to be considered as a participant in their study.

I didn’t expect to ever hear from them.

Imagine my surprise when I discovered a voice mail left by a lady from their company late Friday night, less than 24 hours after I’d registered, requesting a return phone call. Imagine my continued surprise when I returned the call Saturday at noon AND SHE ANSWERED HER PHONE. Instead of introducing myself, I said, “My goodness, but you work a lot of hours!” To which she replied, “I guess you’re calling about the study… yes, the response has been absolutely overwhelming. Hundreds of women are coming forward to try and help. It’s not about compensation, we offer none. It’s about helping the younger generations that have this disease.” I told her that’s exactly why I was calling.

She asked several screening questions and then told me that she’d like to send out a packet, which requests my medical records concerning the diagnosis of and surgery for endometriosis. She said they also request some genealogical information, as they have learned that endometriosis can be passed down through the mother or the father. And, lastly, I would need to provide a sample of my saliva for DNA testing — they are looking for a commonality in all the DNA samples they are collecting. Something that they can eventually screen in DNA so that diagnosis of endometriosis can be made through a simple saliva test, rather than invasive surgery.

How cool would that be? A simple saliva test.

My endometriosis affects my intestinal system, so I spent a lot of time seeing gastroenterologists and having tests performed on my bowels. Today, knowing what the problem is, it’s quite apparent that the doctors spent a whole lot of time looking up the wrong hole.

Did you know that endometriosis has been found in little girls who’ve not even had their first period. Did you know that the average period of time, from the first complaint to actual diagnosis of endometriosis, is 10 years? Did you know that what women hear from their doctors until diagnosis is given, are things like, “it’s normal to have difficult periods”, or “that’s normal for some women, it’s just how you’re made,” or “it’s all stress related, you need to learn how to manage stress.”

I sent my packet off today.

The way I’ve got it figured, either I’ll be a tiny, tiny part (1 of 5,000) in helping future generations of girls and women suffer less, or they’ll be creating a clone of me from my DNA.

Probably the latter, because I’m just that cool.

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Filed under Health/Endo